Noah has to see an endocrinologist, cardiologist, surgeon (for follow up), audiologist, occupational therapist, pediatrician, and possibly the geneticist all within the month!
When we found out that he had failed the hearing screening twice and that Downs kids usually have hearing issues my husband made a comment about learning sign language. It sort of startled me…it was a reminder that life was truly going to be different with Noah. I think so far it felt more like a stage rather than a lifestyle—kind of like an injury that requires being in the hospital for a prolonged period of time, but once you’re out everything goes “back to normal.” However, Down syndrome isn’t a stage and with it come a slew of other things that remind me of that fact.
But as each day goes by we adjust to this new normal because we love Noah. There’s nothing I wouldn’t do for him. If we have to see 7 doctors then we are going to see 7 doctors! Thank God for health care coverage!
It’s also amazing that I feel so at peace about it all. I mean, the days are a blur because I’m just busy handling it, but I find joy in the process. Don’t get me wrong, I’m constantly reminding myself to check my attitude and my perspective with God, but it’s been easier than I would have thought. God is truly good to me. I want to keep clinging on to God because the moment I start doing things my way I know I’ll start sinking.
So here’s to always depending on God who has held me above water this entire time and won’t stop unless I choose to look away.
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